My story begins at 18 and my journey for the next 4 years are tough.
I always had really sore and heavy periods but I just thought that was normal as no one really spoke about them! But as I started getting older and when I reached 18 the pains got worse and I just kept pushing on the months that followed were tough and I reached a really low point in life, where what was supposed to be the best time turned into my worst.
I tried to take my life a few months after my 18 birthday and if my mum hadn’t come home at the time she did, I would not be here today. After I recovered and felt normal again, I was happy going out drinking with friends and then boom period time came and each month they kept getting worse the pains got more intense and I felt like my body was failing me so I went to my doctor and was diagnosed with IBS which at the time thought that was my problem fixed but that was only the start.
Things settled down for a month or so but then each month after that when my period came, my symptoms got worse. So bad that one day in my work I got sent home and that night I ended up in hospital and I found myself getting ready for surgery the next day to remover my appendix as they thought that was what was causing all my pain.
The recovery was hard and painful but I thought finally no more pain!
I was wrong and the next year that followed, I spent working in a pharmacy and going to work most months in crippling agony but I could not afford not to go to work so I just put a smile on and did what I had to do. Then as things were getting much worse I needed up at my doctors more and more often and had different tests done blood taken and different medications to take to try ease my pain but nothing worked I was getting no where fast and as I was a young girl the response I got was ‘are you sure you aren’t pregnant’ which to this day I still get!
As doctors weren’t getting anywhere I had changed my diet and was told to test my blood sugars as they thought I was diabetic had to eat a coeliac diet everything I tried I still got pain. It got to the point where instead of just at my period it was everyday and now I was being sick the sickness is one of the symptoms I hate it’s awful I can go anything from 5 hours to upto 4 days being sick, I was back and forth to the hospital while trying to hold down a full time job and I myself were finding things hard it was getting me so down as no one knew what was wrong or how to fix it.
Finally, In January this year, I got the best and worst news yet – I had an operation to check inside my womb (laparoscopy) that then showed I had ENDOMETRIOSIS.
Endometriosis is a medical condition that occurs when the lining of the uterus, called the endometrium and grows in other places, such as the fallopian tubes, ovaries or along the pelvis. When that lining breaks down, like the regular lining in the uterus that produces the menstruation, it has nowhere to go.
This causes cysts, heavy periods, severe cramps and even infertility.
Since my operation, I still get a lot of pain and really bad bloating I’m currently going through different treatments to see if any work for me but so far nothing is helping. I have to take morphine everyday to numb the pain. This is my normal and I hate it. I’m constantly having to cancel plans through miss endo causing me to not leave my bed and it affects relationships too as sex is often really sore. One doctor told me to either get pregnant or have a hysterectomy which at 22 is tough. There is no cure and 1 in 10 women have endometriosis but no one knows about it as it is a ‘woman’s problem’ the stigma that surrounds it makes me angry as this is my life and something more needs done to try and help those who live in constant agony everyday to have some sort of pain free life, it took me4 years to find out what was wrong and I will keep fighting as I will never let this debilitating illness take over.